eds

still not feeling good today. been sleeping all day & cuddling my pupper. that ER trip really wore me out. Follow Oliver's Kitty Family @3meows1house ———————————— 🐾Follow our Pack🐾 @servicedogkasida @cali_thesdlabradoodle @maceychoochpsd @meandjoshua @greenarrowservicepup @strength_by_four @guidepuppy_pepper @hazel_at_your_service @miraclepsditmatilda @theservicedogdakota @the_collared_hero @go_pibbles_go ___________________________ #servicedog #servicepit #sdit #psychiatricservicedog #medicalalertservicedog #tasktrained #pit #pitbull #pitbullsofinstagram #anxiety #panicattack #panicdisorder #POTS #dysautonomia #eds #potsie #ehlersdanlossyndrome #chronicpain #invisbleillness #invisibledisability #spoonie #servicedogsofinstagram #pibble #endBSL #dontbullymybreed #cardiacalertdog #gofundme #dogsofinstagram

eds

I Got out of surgery a bit ago! Wasn't doing too well so stayed in recovery for a long time on oxygen and trying to get my pain and heart rate under control. Thanks for well wishes from everyone who sent them :)💓Still hanging at the hospital but I'm on to recovery! #EDS #ehlersdanlossyndrome

eds

Takie poranki to ja lubie! 🔥🔥🔥 . @voltbyegurrola @egurroladancestudio #egurroladanceagency #volt #voltbyegurrola #tvproject #rehearsals #morning #friyay #eds #dancers

eds

{Photo of me in post op recovery sitting in a recliner, holding an ice pack over my chest, wearing glasses with an IV in my left hand.} Well ladies & gentleman, this may be the LAST PICTURE I ever have taken with an IV in my arm. (Depending on hospital procedures of how they can draw blood- some will only use for infusion, not blood draws.) Surgery is done, icepacks are in use, I'm in bed with cats, and #TheHusband is working from home to cater to my every need (<--- I threw that last part in myself). I am officially the proud owner of a BARD Power Port. Trying to get up my courage to use it Sunday for my infusion (1st port I accessed it the next day, 2nd port 2 weeks later), but full disclosure I may chicken out. 🐥 Thank you everyone for the magic and glitter and juju and prayers and sparkles and vibes that you send from all over this great big world. 💖🔮✨🌎 #ChronicallyMeg #MSandMeg #MS #MultipleSclerosis #InfusaPort #PowerPort #MediPort #Infusions #Surgery #Outpatient #ThisIsMS #LivingWithMS #ADecadeWithMS #MSJourney #MSProblems #Dysautonomia #EDS

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On Wednesday mornings I organize my pills (and my dog, Fozzy's) for the week. I have to cut so many meds in quarters and halves because of my mast cell issue that it takes forever. I've realized that I swallow 22 pills a day to survive. I'm not ashamed of this number because although big pharma sucks, pharmacology saves!! I'm thankful for these medications even though I've had a bittersweet relationship with them in the past, and hate that I need them. How many pills do you take per day?? 💊💊

eds

I'm going home! We started feeds last night and I was able to tolerate 30ml/ hour for 4 hours! We are probably going to go down to 10ml/ hour and see if we can run it longer so I can get used to it, but I can do that at home in my own bed! This morning I was even able to get to the bathroom all by myself! My mom stayed close by, but that's a big improvement from the bed pan I used the first day and getting practically carried to the bathroom yesterday. Thank you all for your love and support... It means so much to me! I really don't think I could've gotten through this without you guys💕 #strongerthangastroparesis #tubie #GJtube #posturalorthostatictachycardiasyndrome #POTS #dysautonomia #gastroparesis #EDS #ehlersdanlossyndrome #amplifiedmusculoskeletalpainsyndrome #AMPS #RSD #CRPS #fibromyalgia #chronicpain #invisibleillness #butyoudontlooksick #spoonie #spooniestudent #spooniestrong #spoonielife #chronicallydetermined #chronicallyhopeful #motivation #strongerthanAMPS #strongerthanPOTS #peoplehopetribe

eds

المعرض المصري الثامن لطب الاسنان #eds #dental #material

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eds

Gen 3 Glock with our EDS? Yup. $430 price point? Yup. Head to our cannon store to see what's left in-stock! #pws #primaryweapons #sagedynamics #glock #glockinc #valentinesday #eds #edc #perfection #handgun #pewpewpew #everydaycarry

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